AM didn't get "hooked up" until around 1030. The "hook up" process last about 30-45 minutes so we were done around 11. She was very cooperative for the most part (I couldn't imagine going through this with a toddler...uuuggghhhh), until the vibration sensor was attached to her throat. She became quite vocal. She wanted us to know how she felt about all this. Obviously we were tickled and couldn't quit laughing since she doesn't ever complain about anything. After getting all 30 or so monitors on they wrapped her head with gauze as well as all the wires. She was not having this. She screamed her head of (so uncharacteristic of her) until they were done. She was do to eat around 11. I tried to feed her but needless to say she was worn out and didn't eat. She slept very soundly until 6.
She was a trooper through it all and I am hopeful this is her last sleep study!!!
Some pics of the process for your enjoyment:
Other odd facts about this sleep study...
They can hear your every word... should have kept some thoughts to ourselves (as well as some bodily functions)
They see your every move, even in the dark... creepy feeling that you are being watched
Our tech may have been going through drug withdrawals with all the nervous twitching going on.
It was very chilly in our room and I am never cold.
The shower in the morning was less than enjoyable with absolutely no water pressure.
Monday we went to see doctor Miller and were very encouraged with AM's progress. We are changing a few medication (upping the dose) but all in all everything looks great which is a blessing.
And because I am behind... Let me share my day today. Due to the fact that AM's cortisol level was not checked at the sleep study we had to go this morning and have labs. Every time the girls have been so good at getting the vein on the first stick. NOT TODAY! we eventually got an order and were able to get blood from her foot (hopefully for all 5 test that need to be done). While holding AM's foot steady the tech tells Miles (my 3 year old) "don't do that." I look over and he has my car keys stuck in an OUTLET! I scream and tell him to take them out and he wiggles them to try and remove the key. My heart is about to explode because I couldn't do anything. Luckily, after tears from mommy yelling, he is okay and didn't suffer the consequences of sticking metal in an outlet.
I could not possible deal with more stress in my life BUT unfortunately GOD thinks differently. I can only trust that "for those who love God all things work together for good, for those who are called according to His purpose." (Rom. 8:28)

Picture #3 is just too precious for words! She is most definitely a trooper. So glad they accommodated you at the study! You guys continue to be such a living testimony of strength and faith. We're will keep praying for you all!
ReplyDeleteAM smiling while hooked up to all that stuff is too precious. You are doing an amazing job, dont worry about the small stuff. We can do all things through Christ who strengthens us.
ReplyDelete